There is something bothering me, and something I want to make clear.
First, this blog is somewhat anonymous as I do not announce or name myself or my family members in detail, you'd have to dig to get more information, and most of you don't want to do that, you'd just like to hear what I have to say, especially those of you with Fibromyalgia or some other silent disease who are trying to find their way through it and cope, and find hope!
I posted a couple of days ago, very generically about how the fibromyalgia, and abuse of one of my children has affected me and my immediate family here in the house, and how we were disowned by a wing of the family because of some of those issues. The issues were so overwhelming and significant to me that they stopped me from blogging for two months as I dealt with grief.
I posted the story about it, hoping to show other people with fibromyalgia or lupus,or other silent diseases that they are not alone in their struggles. The common story of family rejection linked to these illnesses happens to others and is echoed in many forums for these illnesses around the internet community! I also posted about several other unrelated topics in the same post.
Since that post, I have been harassed by a couple of family members, who were NEVER identified by name. Apparently they feel that even if they cannot be linked to what I am posting about, without some serious effort from one of you, that they can censor what I put in this blog. I just want to state, for the record, that I won't allow bullying to silence what I have to say, especially as it relates to how Fibromyalgia has changed my life and distorted relations with friends and family. That would run counter to the actual purpose of this blog which is to discuss living with that illness while raising a family, and crafting a small business. (see the statement at the top of the blog where it says this)
So anyway, to those of you wonderful followers who read my posts and appreciate that I am trying to help others by sharing some of these panful stories in a generic fashion, thank you. It's hard to go through the experiences and very hard to write about them, but I am very grateful that you lend an ear or words of support, or just your thoughts.
To the ones who are angry because you feel guilty that you perpetrated some very nasty acts against me and my family unit this year due to your misunderstanding of my illness and your failure to protect an abused child over abusers, please remember that the internet is like the television set. If you don't like what I have to say, you can change the channel. I am not naming any of you by name and I have family all over the US so I could be talking about anybody, so I am not defaming you, and it's NOT being posted to the pages of your friends unless YOU put it there.
Furthermore, passing around links of the post to family who knew nothing about the blog topic because they deliberately aren't followers or friends, or fans, just to raise trouble and cause pressure or strain, is totally uncalled for, and certainly does not facilitate healing of the family that I have worked for and you profess to want.
I'll continue to write what I feel and what I'm thinking about because I have the freedom in this country to do so. It's also therapeutic to me and for others, based off of the responses I get.
This is very sad, because this blog is not meant to be a battleground and I won't allow it to be.
I am sorry the rest of you had to hear this very unhappy post, but I guess it illustrates again how difficult it can be when relations go bad in a family due to these invisible ailments.
Now that I've made THAT clear, let's get back on to happier subjects, eh?
This blog is about the process I follow while making my various creations, Yarn, paint, Recipe writing, etc, and is also about life as it happens around here. I want to talk not only about creative fun, but the experience of having Fibromyalgia and raising a family while creating that fun. My Etsy shop is at: www.etsy.com/shop/skyemberr
Thursday, November 17, 2011
We're Featured Artists Today!
Today we are a featured artist for crocheted goods in an online Stroll that is part of a movement to help people shop handmade items for this Christmas and Hannukah so they can give unique and special gifts to their friends and family! The link to the Stroll is: http://blog.designs-by-debi.com/
We will be in it again in a couple of days, featuring some new pretties that I've made.
We will be in it again in a couple of days, featuring some new pretties that I've made.
Wednesday, November 16, 2011
Andy and Women over 40
Hello there!
I just thought I would share this divine bit of humor from Andy Rooney. I don't think I have ever heard it put better than he has here, but it certainly describes many of us females in an accurate and complimentary manner! ( I am 39 but it still describes me to a tee) Click the enclosure link to read it. http://www.divinecaroline.com/22323/34969-andy-rooney-forty
I hope that you all are enjoying the week. I have a teething baby who is trying very hard to keep me in bed with her, so have snuck out to make a post. We all need some humor now and again. :) If I can stay out of bed long enough I am going to try to get some crafting done but I am not optimistic. She's waking up about every 20 mins or so looking for Mama. I have Dad in there taking my place since it's his bedtime, but if she wakes up enough that may not suffice.
I sold my first ring this week, so am in good spirits. I am also happily awaiting some beads in my mailbox, and supplies for the upcoming "first" craft show. Fire Mountain has this neat thing called "The Bosses Bead Bag" which is one pound of random beads, findings and settings that they scoop into a bag for $6.00. I got some awesome stuff last time, so am excited to see what this one has!
I still haven't managed to grab some sunlight time for pictures of jewelry or handbags, but have a ton of new inventory to put in my shop, including Vera Bradley bags in my ebay shop, and Lands End shoes. The link to that shop is: http://stores.ebay.com/skyemberr . In a day or so I should have a couple more Veras in there including a big, perfect Vera Bradley 2011 Winter Collection Mandy Safari Sunset tote bag that I will probably not have for long. I just need to get it photo'd! :)
I just thought I would share this divine bit of humor from Andy Rooney. I don't think I have ever heard it put better than he has here, but it certainly describes many of us females in an accurate and complimentary manner! ( I am 39 but it still describes me to a tee) Click the enclosure link to read it. http://www.divinecaroline.com/22323/34969-andy-rooney-forty
I hope that you all are enjoying the week. I have a teething baby who is trying very hard to keep me in bed with her, so have snuck out to make a post. We all need some humor now and again. :) If I can stay out of bed long enough I am going to try to get some crafting done but I am not optimistic. She's waking up about every 20 mins or so looking for Mama. I have Dad in there taking my place since it's his bedtime, but if she wakes up enough that may not suffice.
I sold my first ring this week, so am in good spirits. I am also happily awaiting some beads in my mailbox, and supplies for the upcoming "first" craft show. Fire Mountain has this neat thing called "The Bosses Bead Bag" which is one pound of random beads, findings and settings that they scoop into a bag for $6.00. I got some awesome stuff last time, so am excited to see what this one has!
I still haven't managed to grab some sunlight time for pictures of jewelry or handbags, but have a ton of new inventory to put in my shop, including Vera Bradley bags in my ebay shop, and Lands End shoes. The link to that shop is: http://stores.ebay.com/skyemberr . In a day or so I should have a couple more Veras in there including a big, perfect Vera Bradley 2011 Winter Collection Mandy Safari Sunset tote bag that I will probably not have for long. I just need to get it photo'd! :)
Sunday, November 13, 2011
Fall is going nicely
I know it's been awhile since I've posted. We've had some things to settle. We got the house moved, got stuff out of storage for the first time in 3 years, had some nonsensical battles with family, and have generally worked pretty hard as a family in the last three months!
I have been continuing to make jewelry and crochet (though did that less while it was so warm). I am getting much better at my wire wrapping and have made a lot of friends through the facebook community that are both jewlery makers and people who craft beads. I've learned a lot and been inspired by so many of them. I had not suspected that the community would be so welcoming, but it is, and a lot of the petty squabbling you would expect between people who are basically selling similar items is not there for the most part. There is a great group, called Color Combo Challenge, (look up CCC in search on facebook) and they have been amazing. Every week we select colors, then by the end of the week we all post up pictures of what we made using those colors. There are advanced artisans as well as beginners in there and everyone is really helpful!
My fibromyalgia has been having it's typical ups and downs, but overall I am feeling a bit better since I started trigger point injections in my spine and my calves. The injections are a long acting drug that is similar to lidocaine, called Marcaine. It doesn't make me goofy, but it numbs up those big knots long enough for them to release (about 18 hours), so I am having far fewer problems with my shoulders, arms, hands and legs. I can start to feel it wearing off by week 3, and then I am eligible to have them again in week 4. Really the biggest problem I am having is insomnia and the lack of sleep from that. I find myself dropping off to sleep instantly in odd places and positions with no warning. I just don't feel sleepy and WHAM! I am out cold. We're still working on that. I get to see a new doctor for that at the end of this month and I hope he has some ideas or answers.
As to the family problems, we had some issues with our oldest daughter being emotionally abused over the last couple of years. It got steadily worse until finally we had to leave (that's why we moved) to get away from the abuse. Some of my husband's family got very angry with me for stating that it had happened publicly, without naming who the abuser was. In a nutshell, between the fibromyalgia problems and that issue they decided that I must be insane. Meanwhile, my 9 year old was put in the middle when all of them elected not to show up for her birthday for various reasons. I VERY unoffensively asked on facebook to reschedule it so my daughter would not be crushed, but they turned that into a huge fight, attacking me and my skills to mother my child in front of about 300+ people on my facebook page, and then as a group defriended me. From that point on most of them elected not to speak to me at all. Then in September I tried to get the person who had done the smallest amount of attacking to apologize for her actions, and I was told that me, my 2 daughters and my husband were no longer part of the family.
Normally, I would tell ANYONE who did that to go take a long hike off of a short pier and drive on with my life, but since my husband and daughter loves them, I tried very hard to mend fences. I apologized 3 times for things I didn't even really do, and was told my apologies were not good enough, meanwhile none of them have apologized at all to date. I am at the point where no more apologies will be forthcoming from me. My husband feels the same way. This makes things awkward since we used to have 30+ person family functions but now we will no longer be doing that. Christmas this year will be interesting (though much cheaper!).
We attended our first (tense) event with all of the family who has been nasty to us present tonight and managed to get through it without bloodshed. We ignored them and vice versa, but my daughter was still hurt when they came in the door and all of her cousins had been told not to play with her. That was fixed and things were ok, but I don't see us being in close proximity again soon until someone gets married. The reason we all got together tonight was to congratulate my brother in law on his engagement!! :)
So anyway, my point of telling this long story was to talk about the ways in which fibromyalgia can effect our lives. They decided that since I have to take non-opiate drugs and have a sleep disorder that I am a terrible mom and am insane. When I did what the National Fibromyalgia Association recommends, which is to write a letter and explain my disabilities, the entire family ignored it, and some of it labeled it my "Manifesto to Justify My Actions" as if I am the unabomber for saying publicly that my kid is being abused so it will STOP. I am not sure if that happens a lot as well in families where abuse becomes an issue, where the rest of the family gangs up on the parent who leaps in to stop it, but I suspect that might be the case. Of course the stress and crazinesss and disrespect from the family highly aggravated the fibro for a few weeks there, but I did lose about 10 pounds! ;)
My daughter is doing much better now that she is in a safer place and talking to a counselor. She even has friends that live all around her here and after school this house becomes the romping ground of 3 to 4 kids. She's never had that before and needs it. She's having some challenges at school because she's hearing impaired and 2 of her teachers are not well educated about how to work with a hearing impaired kid. Plus, after what she's been through this fall she's very prickly and could give a damn about what an adult says if she feels they are out of line. This is not great for a 9 year old because it gets her in trouble and makes it harder for her teacher to gauge how to deal with her. I am trying to be patient, and let her heal and let her know that we love her, no matter what.
On the business side things have been pretty good! My fan page on facebook is up to nearly 550 and I am getting regular sales from both my ebay and etsy shops which pay for my supplies and a bit more. I have been working my tail off trying to get ready to do my first craft show in December. I've never done one before but think it would be neat. It's a good way to get my feet wet and see if I can earn a little bit of money to spend on my family this christmas. I am enjoying the jewelry making and will be learning soldering and chain mail jewelry in December. After that I may do some stained glass classes with whatever else tickles my fancy thrown in. I am very interested in lampworking beads, but have not found a good place/time for a class, plus I am not equipped here to do it, though I have some great role models!
Here are some pictures of my recent work:
Sea Gifts
Cobalt Ice
Angie's Heart
Turquiose Stardust
Autumn Glory
Tree of Life
Swirls and Dots
Some of these are still up for sale in my etsy shop which is at http://www.etsy.com/shop/WindscryDesigns
Anyway, as you can see, I've been a busy bee! I am working on christmas designs now, and also on making rings. I just learned how to make them. here is one of my first ones. The stone in it is called Candy Jade.
To all of my followers, I am sorry it's been so long snce I posted, but as you can see we had some issues to work out and a lot of unpacking to do. I love our glorious new house. I had wanted a garden and this one came with about 20 fully mature rose bushes ringing a fountain. I have saved and dried many of the petals for making sachets and will be selling those along with ones made from lavender I start in my greenhouse this winter.
Farewell for now, and hopefully it won't be so long until I post again!
I have been continuing to make jewelry and crochet (though did that less while it was so warm). I am getting much better at my wire wrapping and have made a lot of friends through the facebook community that are both jewlery makers and people who craft beads. I've learned a lot and been inspired by so many of them. I had not suspected that the community would be so welcoming, but it is, and a lot of the petty squabbling you would expect between people who are basically selling similar items is not there for the most part. There is a great group, called Color Combo Challenge, (look up CCC in search on facebook) and they have been amazing. Every week we select colors, then by the end of the week we all post up pictures of what we made using those colors. There are advanced artisans as well as beginners in there and everyone is really helpful!
My fibromyalgia has been having it's typical ups and downs, but overall I am feeling a bit better since I started trigger point injections in my spine and my calves. The injections are a long acting drug that is similar to lidocaine, called Marcaine. It doesn't make me goofy, but it numbs up those big knots long enough for them to release (about 18 hours), so I am having far fewer problems with my shoulders, arms, hands and legs. I can start to feel it wearing off by week 3, and then I am eligible to have them again in week 4. Really the biggest problem I am having is insomnia and the lack of sleep from that. I find myself dropping off to sleep instantly in odd places and positions with no warning. I just don't feel sleepy and WHAM! I am out cold. We're still working on that. I get to see a new doctor for that at the end of this month and I hope he has some ideas or answers.
As to the family problems, we had some issues with our oldest daughter being emotionally abused over the last couple of years. It got steadily worse until finally we had to leave (that's why we moved) to get away from the abuse. Some of my husband's family got very angry with me for stating that it had happened publicly, without naming who the abuser was. In a nutshell, between the fibromyalgia problems and that issue they decided that I must be insane. Meanwhile, my 9 year old was put in the middle when all of them elected not to show up for her birthday for various reasons. I VERY unoffensively asked on facebook to reschedule it so my daughter would not be crushed, but they turned that into a huge fight, attacking me and my skills to mother my child in front of about 300+ people on my facebook page, and then as a group defriended me. From that point on most of them elected not to speak to me at all. Then in September I tried to get the person who had done the smallest amount of attacking to apologize for her actions, and I was told that me, my 2 daughters and my husband were no longer part of the family.
Normally, I would tell ANYONE who did that to go take a long hike off of a short pier and drive on with my life, but since my husband and daughter loves them, I tried very hard to mend fences. I apologized 3 times for things I didn't even really do, and was told my apologies were not good enough, meanwhile none of them have apologized at all to date. I am at the point where no more apologies will be forthcoming from me. My husband feels the same way. This makes things awkward since we used to have 30+ person family functions but now we will no longer be doing that. Christmas this year will be interesting (though much cheaper!).
We attended our first (tense) event with all of the family who has been nasty to us present tonight and managed to get through it without bloodshed. We ignored them and vice versa, but my daughter was still hurt when they came in the door and all of her cousins had been told not to play with her. That was fixed and things were ok, but I don't see us being in close proximity again soon until someone gets married. The reason we all got together tonight was to congratulate my brother in law on his engagement!! :)
So anyway, my point of telling this long story was to talk about the ways in which fibromyalgia can effect our lives. They decided that since I have to take non-opiate drugs and have a sleep disorder that I am a terrible mom and am insane. When I did what the National Fibromyalgia Association recommends, which is to write a letter and explain my disabilities, the entire family ignored it, and some of it labeled it my "Manifesto to Justify My Actions" as if I am the unabomber for saying publicly that my kid is being abused so it will STOP. I am not sure if that happens a lot as well in families where abuse becomes an issue, where the rest of the family gangs up on the parent who leaps in to stop it, but I suspect that might be the case. Of course the stress and crazinesss and disrespect from the family highly aggravated the fibro for a few weeks there, but I did lose about 10 pounds! ;)
My daughter is doing much better now that she is in a safer place and talking to a counselor. She even has friends that live all around her here and after school this house becomes the romping ground of 3 to 4 kids. She's never had that before and needs it. She's having some challenges at school because she's hearing impaired and 2 of her teachers are not well educated about how to work with a hearing impaired kid. Plus, after what she's been through this fall she's very prickly and could give a damn about what an adult says if she feels they are out of line. This is not great for a 9 year old because it gets her in trouble and makes it harder for her teacher to gauge how to deal with her. I am trying to be patient, and let her heal and let her know that we love her, no matter what.
On the business side things have been pretty good! My fan page on facebook is up to nearly 550 and I am getting regular sales from both my ebay and etsy shops which pay for my supplies and a bit more. I have been working my tail off trying to get ready to do my first craft show in December. I've never done one before but think it would be neat. It's a good way to get my feet wet and see if I can earn a little bit of money to spend on my family this christmas. I am enjoying the jewelry making and will be learning soldering and chain mail jewelry in December. After that I may do some stained glass classes with whatever else tickles my fancy thrown in. I am very interested in lampworking beads, but have not found a good place/time for a class, plus I am not equipped here to do it, though I have some great role models!
Here are some pictures of my recent work:
Sea Gifts
Swirls and Dots
Some of these are still up for sale in my etsy shop which is at http://www.etsy.com/shop/WindscryDesigns
To all of my followers, I am sorry it's been so long snce I posted, but as you can see we had some issues to work out and a lot of unpacking to do. I love our glorious new house. I had wanted a garden and this one came with about 20 fully mature rose bushes ringing a fountain. I have saved and dried many of the petals for making sachets and will be selling those along with ones made from lavender I start in my greenhouse this winter.
Farewell for now, and hopefully it won't be so long until I post again!
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